CTCL Resources
Comprehensive resources for patients and healthcare providers dealing with Cutaneous T-Cell Lymphoma. Find organizations, educational materials, support groups, and more.
Original guidance reviewed for this app
Reviewed 23 September 2026. Society consensus and expert-panel guidance are identified by source; the directory below also contains patient education and advocacy resources, which are not prescribing protocols.
Organizations
Cutaneous Lymphoma Foundation
The primary patient advocacy organization for cutaneous lymphomas
Visit WebsiteLeukemia & Lymphoma Society
Offers information and support services for patients with blood cancers
Visit WebsiteLymphoma Research Foundation
Dedicated to funding innovative lymphoma research and providing information and support to patients and caregivers
Visit WebsiteUnited States Cutaneous Lymphoma Consortium
Professional organization dedicated to improving the quality of life and prognosis for patients with cutaneous lymphomas
Visit WebsiteEducational Resources
NCCN Guidelines for Patients: T-Cell Lymphomas
Patient-friendly version of the NCCN Clinical Practice Guidelines
Download PDFCutaneous Lymphoma Foundation Educational Videos
Video presentations from experts on various aspects of CTCL
Watch VideosFind a Specialist
Cutaneous Lymphoma Foundation Specialist Directory
Comprehensive directory of CTCL treatment centers and clinical trials worldwide
Find a SpecialistPatient Education & Handouts
Understanding CTCL: A Patient's Guide
Comprehensive overview of CTCL for newly diagnosed patients
Download PDFGeSkin Care Routine for Xerosis
Recommended skin care practices for CTCL patients
Download PDFAdditional Patient Resources
For more educational materials and resources:
View Clinical Documentation Templates